Rebecca's World

A place to share my millions of pictures and very random thoughts:) Welcome and please feel free to comment:)

Friday, July 24, 2009

Update on Kaiya's vision. Not what we were hoping for:(

Well, Preston and I took Kaiya to Children's for her eye appointment yesterday and were excited because we finally got her to wear her glasses consistantly. Well... we were shocked when the assistant starting testing her with letter and picture matching.... she looked concerned and stopped her test early and we waited to see Dr. McGregor. She came in and did a ton of different tests on Kaiya and she was getting everything wrong with her bad eye, even with her glasses on. So, Dr. McGregor gave us the news that Kaiya has lost all vision in her left eye. She is legally blind as of this point. Preston and I were devastated to hear this. She is considered "visually impaired". We have one hope for correction and it is not a definite, it is 50/50 at best. But we must start patching her good eye to force the bad eye to try to work. We have until the age of 5 for possible correction, but the eye is so bad now, that she is not certain it will work even if we patch her all the time, which so far is not working. Kaiya is headstrong by every measure not to mention extremely manipulative. So to say patching her is a challenge is a major understatment. We are going to do everything we can to try to restore her sight but it will be a battle to the finish just as her glasses were for an entire year. The hardest part for me is the thought of putting her through all this and it not working. If it does not work, she will never have sight in that eye again, there is no surgical fix... all there is is a surgery to make her eyes "look" normal.

Thanks already for all the prayers, words of encourement and good thoughts. We appreciate it a ton and we will work hard to get through this, just like we did with the glasses!

4 Comments:

At 3:29 PM , Blogger Tiffany McCallen said...

Oh Beck... I'm so sorry! That's tough news. I'm glad, though, that there's still hope. My nephew wore a patch as a kid, and he just has to wear normal glasses now. His eye condition wasn't as severe as Kaiya's, but it did work for him. Saying a prayer for you and sending lots of love your way...

 
At 11:52 AM , Blogger Gamma said...

I hope that the battle gets easier for you, Preston and Kaiya. Hopefully she will understand quicker since you guys never gave up on the glasses, she will get that you are not going to give up on the patches either. Someday she will appreciate your perseverence, but as of right now she will be a strong willed three year old! You are in my prayers!

 
At 7:35 PM , Blogger Unknown said...

Oh Beck. I am so sorry. Praying that it gets better and easier for sweet Kaiya and you guys.

 
At 5:13 PM , Blogger MissRebecca said...

Thanks so much for your kind comments! We are on it:)

 

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